Lucy had fun playing in her bouncy seat today, but just can't seem to catch a break. She hasn't been feeling well today and currently has a slight fever, so she'll be treated with two very strong antibiotics to be cautious against risk of infection. Her pulmonary edema has slightly improved for the past several days after changing the dosages of diuretics to increase the excretion of fluid in her lungs.
Lucy is also back on vapotherm, which delivers a high flow of oxygen to assist with her breathing and prevent tachypnea (increased rate of breathing) and an increased work of breathing. By definition, Lucy is in congestive heart failure. because the cardiac output is low and insufficient for her body's needs.
She may require another cardiac catheterization that will provide a very detailed look at her heart and other anatomy.
Happy Belated Down Syndrome Awareness Month
11 months ago
10 comments:
love her smile! so sorry to hear that she has a fever and is "puzzling" her doctors - i really hope they can solve the puzzle soon! hope lucy is much much better very soon!
Hang in there...saying prayers for you all and for Lucy (I'm a friend of Jessica's)
oh, it so great to see her little smile:) we say a prayer for lucy every night:)
Oh, Lucy. We all love you so much. You're getting good thoughts from all around the world, at least three continents. Feel better, baby girl.
Oh sweet girl. Hopefully they can get this all figured out. Oh how I remember that loong hospital stay with him stumping the doctors. Our kids are definitely unique.
So good to see a smile...hang in there Captain Courageous. You are such a star.
I think of your family every day. I am sending positive thoughts and happy hopes your way!!
I love the pictures of Lucy. She sure is a cute one!! Keep posting them!
She is such a cutie. I am sorry to hear that she is still stumping the docs. Hopefully they figure out what to do to help your little cutie. Hang in there, like I said before things can turn better quickly. Will keep thinking and praying for you and your family.
Been following your blog for awhile now and even though I'm a stranger, I'm sure I'm not alone in wishing Lucy strength and good health and good vibes and good everything. I want to wrap you all up and give you big big hugs.
"Pain throws your heart to the ground....love turns the whole thing around...." -J. Mayer
Saying prayers for you and your mom & dad, Lucy-Miss Cara
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