Lucy’s recovery has gone well. We have been in the Riley Heart Center for four days now and we’ve made progress to get her medications and feeding schedule/amounts adjusted. She’s feeling a little better and is mostly smiles now, but has been extremely fussy and has had periods of constant crying. Her sleep cycle was completely backwards, but we’re working to get her back on track. She’s still on a nasal cannula with ¼ liter of oxygen, which is minimal. Her oxygen saturation drops when she is in a deep sleep, so she’s getting an echocardiogram today to determine what might be causing that.
After we get her off the low amount of oxygen, we’ll be very close to going home and taking care of her there. She still has a lot of time to recover and get her strength back. She lost nearly three pounds during surgery, which doesn’t sound like much, but it equates to about 20% of her body weight. To put that in perspective, I would have lost 35 pounds, so it was obviously very traumatic to her body and she’ll need months to fully recover, but we’re in no hurry.
Lucy will continue to recover in the Heart Center and hopefully she can come home sometime this week and be right where she belongs.
Happy Belated Down Syndrome Awareness Month
11 months ago
2 comments:
Love the cow leggings. Praying that you can get home this week.
Glad to hear that she is smiling. Hope the recovery continues to get better and better and that you are home soon.w
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