Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
5 comments:
She does have beautiful eyes! Hoping she can come home soon!
Beautiful girl.
So adorable! She is taking it all in, isn't she! Hoping she comes home soon and still hoping to meet her at the Buddy Walk.
She looks like she is ready to get outta there! Love the hair!
don't know how to post to tumblr; thinking of you all and hoping that the care conference leads to something more useful, positive and healing for Lucy and the two of you.
with love,
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