Monday, December 26, 2011
Thursday, December 22, 2011
Monday, October 31, 2011
Sunday, October 23, 2011
Friday, October 14, 2011
Sunday, October 9, 2011
Wednesday, September 28, 2011
Last year, Team "Catalina Joyce" was the winning Buddy Walk team, raising an incredible $11,140. So, we're very excited to have done so well this year.
If you haven't donated yet, please help support Lucy and her team by making a small donation. We only have two more days to secure our lead!
Thanks for your support, everyone!
Monday, September 26, 2011
NO MORE OXYGEN! And new glasses!
At Lucy's cardiology appointment today, it was finally decided to try her off of oxygen for an extended amount of time (probably indefinitely). Now that she's scooting around the house, the last thing she needs is a tube holding her back.
We're so excited to see that beautiful face once again!
Friday, September 2, 2011
Sunday, August 28, 2011
Friday, August 26, 2011
It's that time again for the years' most fun event! The Buddy Walk! This year, Lucy has teamed up with eight other beautiful girls to create a team of beauties, because what could possibly be better than an all girl team? Lucy looks forward to walking (or riding in a wagon) with her new friends.
We hope you can help support Down Syndrome Indiana and team Buddy's Beauties by making a small donation at Lucy's fundraising page. Lucy is participating to help promote advocacy, raise awareness and show everyone just how awesome Down Syndrome is.
Thanks for your support everyone!
Wednesday, July 13, 2011
Monday, July 11, 2011
Saturday, July 9, 2011
Wednesday, July 6, 2011
Thanks again to everyone for the lovely prayers, thoughts and wishes. We couldn't have done this without your support. We truly appreciate all of the good people out there that were thinking about our little munchkin during surgery.
Lucy has been recovering extremely well at home. Her oxygen saturation levels are around 93-94% without extra O2s, so she's at the low end of where we would like her to be. So, for the time being she's still on very little oxygen, 1/4 to 1/2 liter flow. We have a follow-up cardiology appointment tomorrow and pulmonology appointment later this month to review her current medications and discuss oxygen requirements.
We are so excited to hopefully have a toobie free baby soon. In the meantime, our little butterball couldn't be more happy to be home. And so are we.
Monday, June 27, 2011
Saturday, June 25, 2011
Lucy had a big day yesterday. Her chest tube was removed, arterial line was pulled, pacemaker wires were pulled and sedation was stopped. She woke up a happy, smiling girl. It was so nice to see her beautiful blue eyes again.
We left the ICU and were moved to the Heart Center.
If it sounds too good to be true, it is.
Lucy's blood pressure was really low all night even after receiving dopamine. And in true Lucy fashion, we are back in ICU. Been awake for way too long and we're all in a delirious stupor.
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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