tag:blogger.com,1999:blog-27846830410268459952024-03-13T11:01:26.816-04:00Teeny Tiny HopkinsOn January 29th, 2009, Lucy was delivered 10 weeks premature via emergency C-section weighing only 2lbs. She was born with Down's Syndrome and several congenital heart defects. After a 75 day stay in the NICU we were able to go home. She then underwent open heart surgery in August 2009 to repair her Atrioventricular (AV) Canal Defect , double outlet right ventricle, mitral valve and extra superior vena cava.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.comBlogger335125tag:blogger.com,1999:blog-2784683041026845995.post-90286396810326677872012-03-21T13:57:00.001-04:002012-03-21T14:00:26.212-04:00Yay for World Down Syndrome Day!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6857361488/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 597px;" src="http://farm8.staticflickr.com/7062/6857361488_179aa63064.jpg" border="0" alt="World Down Syndrome Day!" /></a>Today, we celebrated World Down Syndrome Day at the zoo. Hooray for animal noises!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com6tag:blogger.com,1999:blog-2784683041026845995.post-14317816659388266072012-02-26T15:52:00.001-05:002012-02-26T15:52:44.384-05:00Guess what Lucy's going to be!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6932692507/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7044/6932692507_53de401813.jpg" border="0" alt="Big Sister" /></a>Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com10tag:blogger.com,1999:blog-2784683041026845995.post-78136372773327709332011-12-26T17:24:00.001-05:002011-12-26T17:35:18.045-05:00Merry Christmas 2011!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577492427/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7144/6577492427_800d22e65d.jpg" border="0" alt="Merry Christmas" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577494925/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7021/6577494925_56531c3f62.jpg" border="0" alt="Animal Zoo Talkers" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577496847/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7167/6577496847_35804d176d.jpg" border="0" alt="Animal" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577498733/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7166/6577498733_f6125539ef.jpg" border="0" alt="Vroooom" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577500809/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7001/6577500809_8e938624b1.jpg" border="0" alt="Puzzles" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577502713/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7161/6577502713_d998930a7b.jpg" border="0" alt="Concentrating" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577504565/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7166/6577504565_29099a9f27.jpg" border="0" alt="Listen up, pal" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577506653/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7029/6577506653_aee187218b.jpg" border="0" alt="Presents!" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577508423/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7019/6577508423_492b7f8a68.jpg" border="0" alt="Piano" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577510043/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7145/6577510043_a506173a89.jpg" border="0" alt="Rock n' Roll Elmo!" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6577511743/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7003/6577511743_af43ce591e.jpg" border="0" alt="Little Drummer Girl" /></a>
Best Christmas ever! Such a blessing to have a healthy, happy little girl off of oxygen so we could go to holiday parties and travel to visit family this year. We are thankful every single day for the wonderful year that we have had. Thanks to everyone who got Lucy something for Christmas. We are truly blessed and look forward to another great year.
Happy Holidays, everyone!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com4tag:blogger.com,1999:blog-2784683041026845995.post-29367741502946608572011-12-22T11:46:00.001-05:002011-12-22T11:46:54.774-05:00Merry Christmas!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6521448499/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7174/6521448499_0d863f9664.jpg" border="0" alt="Merry Christmas!" /></a>
A snapshot of this year's Christmas card.
Our beautiful family wishes everyone a Merry Christmas and wonderful New Year!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com0tag:blogger.com,1999:blog-2784683041026845995.post-66417621740174073172011-12-22T11:45:00.000-05:002011-12-22T11:53:23.526-05:00Christmas Cards Past<a href="http://flic.kr/s/aHsj5LZXfq"><img src="http://s3.amazonaws.com/data.tumblr.com/tumblr_lways80pxN1qznaxpo1_1280.jpg" width="448" height="672" /></a>
A review of Christmas past. 7 years of glorious cards, 2004 to 2010.
<a href="">Click to view</a> the entire set.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-60069718391360813632011-12-22T11:43:00.001-05:002011-12-22T11:45:27.211-05:00Elmo Time<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6554690929/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7149/6554690929_2ca0ee50c7.jpg" border="0" alt="Playtime" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6554690031/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7003/6554690031_b898218b3f.jpg" border="0" alt="Beating Up Elmo" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6554688949/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7022/6554688949_ab2d9371e9.jpg" border="0" alt="Elmo Stacking" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6554687943/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm8.staticflickr.com/7016/6554687943_373b8af35c.jpg" border="0" alt="BFF" /></a>
Lucy's BFFJosh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com0tag:blogger.com,1999:blog-2784683041026845995.post-45142704946659286762011-10-31T21:52:00.001-04:002011-10-31T21:53:36.416-04:00100% All Veggie Patty<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6300461037/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6116/6300461037_bfd4a96114.jpg" border="0" alt="100% All Veggie Patty" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6300462169/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6220/6300462169_3d456f4f9d.jpg" border="0" alt="Too Much Candy" /></a>
"I've fallen and I can't get up."Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com1tag:blogger.com,1999:blog-2784683041026845995.post-28862705287240261402011-10-23T01:06:00.003-04:002011-10-23T01:09:29.422-04:00Socks? We don't need no stinking socks.<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6271032127/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6047/6271032127_51f1d412e8.jpg" border="0" alt="Elmo Pajamas" /></a>
<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6271032837/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6101/6271032837_c30822b833.jpg" border="0" alt="Socks? We don't need no stinking socks." /></a>
Sorting cups. Destroying the bookcase. Yelling at plastic forks. Tearing off socks. Getting ready for bed.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-14391790121303721042011-10-14T20:55:00.001-04:002011-10-14T21:01:31.437-04:00Excited for Fall<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6245207396/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6040/6245207396_5c8eacd10b.jpg" border="0" alt="Excited for Fall" /></a>
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Lucy is still toobie free and we couldn't be more excited to play in the leaves outside for Fall. We are all looking forward to our first hayride together next weekend.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com2tag:blogger.com,1999:blog-2784683041026845995.post-17130426149703598602011-10-12T09:35:00.001-04:002011-10-12T09:35:38.985-04:00Lucy Talk<iframe src="http://player.vimeo.com/video/30415549?title=0&byline=0&portrait=0" width="400" height="711" frameborder="0" webkitAllowFullScreen allowFullScreen></iframe>Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-61659451482168640722011-10-09T22:07:00.016-04:002011-10-09T22:13:24.563-04:00Apple OrchardLucy helped pick apples at an apple orchard today. She was pretty good quality control, but if anyone eats an apple with a worm in it, we know who to blame.<br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228817120/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6038/6228817120_558ff8eabc.jpg" border="0" alt="Lucy" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228302513/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6174/6228302513_b068218338.jpg" border="0" alt="Jona-what?" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228304113/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6035/6228304113_4825da40f1.jpg" border="0" alt="Apple Orchard" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228822274/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6037/6228822274_f8436cd5c8.jpg" border="0" alt="Quality Control" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228823324/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6109/6228823324_99a0926fb5.jpg" border="0" alt="Goofballs" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228824878/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6237/6228824878_ed45f6f905.jpg" border="0" alt="Say Cheese!" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6228309283/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6032/6228309283_7682d9f0ff.jpg" border="0" alt="Pumpkin" /></a>Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-453917863475884162011-09-28T21:29:00.000-04:002011-09-28T21:29:10.036-04:00Buddy WalkLucy's team, Buddy's Beauties, have raised an astounding $11,423 and are currently in 1st place in team totals! Unbelievable! We're so excited to be walking with eight new friends.<br />
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Last year, Team "Catalina Joyce" was the winning Buddy Walk team, raising an incredible $11,140. So, we're very excited to have done so well this year.<br />
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If you haven't donated yet, please help support Lucy and her team by <a href="http://www.firstgiving.com/fundraiser/lucykate/buddysbeauties">making a small donation</a>. We only have two more days to secure our lead!<br />
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Thanks for your support, everyone!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com1tag:blogger.com,1999:blog-2784683041026845995.post-34621350041411391132011-09-26T21:16:00.003-04:002011-09-26T21:18:33.037-04:00Toobie Free!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6186936011/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 597px;" src="http://farm7.static.flickr.com/6157/6186936011_47680a63cf.jpg" border="0" alt="Toobie Free!" /></a>Notice anything different?<br />
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NO MORE OXYGEN! And new glasses!<br />
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At Lucy's cardiology appointment today, it was finally decided to try her off of oxygen for an extended amount of time (probably indefinitely). Now that she's scooting around the house, the last thing she needs is a tube holding her back.<br />
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We're so excited to see that beautiful face once again!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com7tag:blogger.com,1999:blog-2784683041026845995.post-25592707651621609002011-09-02T13:16:00.014-04:002011-09-02T13:20:30.461-04:00Zoom Zoom<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6105531009/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6192/6105531009_8a59505836.jpg" border="0" alt="Hoooonk" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6106075866/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6181/6106075866_d19b6755fb.jpg" border="0" alt="Zoom Zoom" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/6105532751/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6068/6105532751_015b1ce1e2.jpg" border="0" alt="Haircut" /></a><br />
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Lucy is ready for a night out on the town with her spiffy haircut, new orthotics and shoes.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-65711181477904891862011-08-28T11:24:00.002-04:002011-08-28T11:24:50.265-04:00Farty Mouth<iframe src="http://player.vimeo.com/video/28254621?title=0&byline=0&portrait=0" width="448" height="796" frameborder="0"></iframe><br />
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Practicing for the Raspberry Blowing Championship.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-83320113112949663982011-08-26T14:49:00.003-04:002011-08-26T15:11:46.026-04:00Team Buddy's Beauties<a href="http://www.firstgiving.com/fundraiser/lucykate/buddysbeauties"><img src="http://thedayhasco.me/blogspot/hopkins/images/buddys-beauties_flyer_blog.jpg" alt="Team Buddy's Beauties" title="Team Buddy's Beauties" class="noBorder" /></a><br />
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It's that time again for the years' most fun event! The Buddy Walk! This year, Lucy has teamed up with eight other beautiful girls to create a team of beauties, because what could possibly be better than an all girl team? Lucy looks forward to walking (or riding in a wagon) with her new friends.<br />
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We hope you can help support Down Syndrome Indiana and team Buddy's Beauties by making a small donation at <a href="http://www.firstgiving.com/fundraiser/lucykate/buddysbeauties">Lucy's fundraising page</a>. Lucy is participating to help promote advocacy, raise awareness and show everyone just how awesome Down Syndrome is.<br />
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Thanks for your support everyone!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com0tag:blogger.com,1999:blog-2784683041026845995.post-13030857480033986162011-07-13T19:59:00.010-04:002011-07-14T09:47:32.235-04:00Get Your Motor Runnin'<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5932957437/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6128/5932957437_a0c5b2ffc5.jpg" border="0" alt="Get Your Motor Runnin'" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5932959217/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6145/5932959217_3fe3e36170.jpg" border="0" alt="Hello Boys" /></a><br />
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Lucy has been cruising the streets in her new ride. They may only be 3" rims, but she keeps them clean.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com2tag:blogger.com,1999:blog-2784683041026845995.post-59066736709849502062011-07-11T09:24:00.006-04:002011-07-11T09:26:08.624-04:00Teeth!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910806524/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6048/5910806524_dc4dd23d49.jpg" border="0" alt="Teeth!" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910812548/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm6.static.flickr.com/5077/5910812548_36a2874fd6.jpg" border="0" alt="Dad!" /></a><br />
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Showing off her full set of razor-sharp shark teeth. Also, you can see the "play corner" in our living room. No, this child is not spoiled at all.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com3tag:blogger.com,1999:blog-2784683041026845995.post-89187779972669013052011-07-09T16:26:00.032-04:002011-07-09T16:41:00.234-04:00Picking Blueberries<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910781724/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6056/5910781724_76a7104605.jpg" border="0" alt="Blueberry" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910788084/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6053/5910788084_f23d7837b4_z.jpg" border="0" alt="Uncooperative" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910795794/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm6.static.flickr.com/5076/5910795794_9c4e3e68bf_z.jpg" border="0" alt="Summer Days" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910801856/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm6.static.flickr.com/5073/5910801856_9233888c8b_z.jpg" border="0" alt="Quality Control" /></a><br />
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Lucy was an excellent helper to pick blueberries and blackberries. She was in charge of quality control which was basically smashing everything she could get her hands on.<br />
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Then again, next time she won't be in charge of quality control.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com5tag:blogger.com,1999:blog-2784683041026845995.post-80676238580642738412011-07-06T21:28:00.037-04:002011-07-06T21:44:55.708-04:00Peek-a-Boo!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910763128/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6099/5910763128_f376439198.jpg" border="0" alt="Peek-a-Boo!" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910214899/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6041/5910214899_574ed4b338.jpg" border="0" alt="Say Cheese" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910210279/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6017/5910210279_ae5c0654ed.jpg" border="0" alt="Peek-a-Boo!" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5910758030/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 298px;" src="http://farm7.static.flickr.com/6024/5910758030_32a3fbee2e.jpg" border="0" alt="Luce" /></a><br />
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Thanks again to everyone for the lovely prayers, thoughts and wishes. We couldn't have done this without your support. We truly appreciate all of the good people out there that were thinking about our little munchkin during surgery.<br />
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Lucy has been recovering extremely well at home. Her oxygen saturation levels are around 93-94% without extra O2s, so she's at the low end of where we would like her to be. So, for the time being she's still on very little oxygen, 1/4 to 1/2 liter flow. We have a follow-up cardiology appointment tomorrow and pulmonology appointment later this month to review her current medications and discuss oxygen requirements.<br />
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We are so excited to hopefully have a toobie free baby soon. In the meantime, our little butterball couldn't be more happy to be home. And so are we.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com2tag:blogger.com,1999:blog-2784683041026845995.post-36572902340533866842011-06-27T21:08:00.002-04:002011-06-27T21:09:42.424-04:00Home Sweet Home!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5879389006/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 600px;" src="http://farm6.static.flickr.com/5318/5879389006_2a84f8c961.jpg" border="0" alt="Home Sweet Home!" /></a>Guess who's excited to be home!<br />
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We were released directly from the ICU this afternoon. Lucy did so well, we are so proud of our warrior princess. This kiddo is stronger than an ox!Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com10tag:blogger.com,1999:blog-2784683041026845995.post-3739289996410473422011-06-25T10:38:00.003-04:002011-06-25T10:46:30.493-04:00Healthy Heart Club, Update 6<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5869152102/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 600px;" src="http://farm6.static.flickr.com/5079/5869152102_5399b90f20.jpg" border="0" alt="Awake!" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5868592819/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 600px;" src="http://farm4.static.flickr.com/3128/5868592819_d9ceea3714.jpg" border="0" alt="Checking email" /></a><br />
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<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5869152704/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 600px;" src="http://farm6.static.flickr.com/5146/5869152704_7297efdef8.jpg" border="0" alt="Sitting Up" /></a><br />
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Lucy had a big day yesterday. Her chest tube was removed, arterial line was pulled, pacemaker wires were pulled and sedation was stopped. She woke up a happy, smiling girl. It was so nice to see her beautiful blue eyes again. <br />
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We left the ICU and were moved to the Heart Center.<br />
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If it sounds too good to be true, it is.<br />
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Lucy's blood pressure was really low all night even after receiving dopamine. And in true Lucy fashion, we are back in ICU. Been awake for way too long and we're all in a delirious stupor.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com6tag:blogger.com,1999:blog-2784683041026845995.post-62235253304189974072011-06-23T22:29:00.000-04:002011-06-23T22:29:15.101-04:00Healthy Heart Club, Update 5Not many changes today. We started G-tube feedings which she has been tolerating just fine. Trust me, you don't want this girl to go too long without any food in her belly, because if she's anything like her mother (she is), she gets mean as a snake when she's hungry (I'm a dead man).<br />
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The main thing today obviously was letting Lucy rest. She slept for 5 hours straight without moving an inch this afternoon. Followed by 3 hours of pure wiggling. It's 10PM now and she's once again fast asleep.<br />
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Speaking with the doctors, tomorrow we hope to start taking away some of the toobies that plague our sleeping beauty. On her right hand she has an IV and arterial line, which is boarded and wrapped up. This is referred to as her "clubbing hand", as it works best as a bat. The other hand is covered with a sock secured down with a velcro restraint; child's play for our little Houdini. <br />
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She has been doing well on 1 liter of oxygen all day long, which is where she was before surgery. The million dollar question is, will she still require oxygen after she has healed? Time will soon tell.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com6tag:blogger.com,1999:blog-2784683041026845995.post-34669568811879962292011-06-23T07:33:00.000-04:002011-06-23T07:33:22.170-04:00Healthy Heart Club, Update 4SHE'S A GRUMPY GIRL DON'T TOUCH HER MOM AND DAD NEED SLEEP SEND HELP<br />
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Our little wiggle monster had an okay first night. She was very restless, trying to find that fine line of just the right amount of sedation.<br />
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She is on Fentanyl (among many others), a narcotic pain killer, which causes itchy skin, especially in the nose and face. Poor thing will stop at nothing to scratch her nose, which she literally rubbed raw last night with a sock-covered hand.<br />
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Should be an interesting sock puppet show today.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com5tag:blogger.com,1999:blog-2784683041026845995.post-36355642043989608842011-06-22T21:34:00.005-04:002011-06-23T07:34:21.380-04:00Healthy Heart Club, Update 3<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://www.flickr.com/photos/thedayhascome/5861495355/"><img style="cursor:pointer; cursor:hand;width: 448px; height: 600px;" src="http://farm6.static.flickr.com/5306/5861495355_1d3bf402a1.jpg" border="0" alt="Home (for now)" /></a>Lucy resting peacefully (for now) in her temporary home in ICU. She doesn't plan on staying long so we will skip the decorations this time around.<br />
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Lucy is currently on a hefty dose of three sedation meds to keep her from tearing the ICU apart. She's basically one step away from a horse tranquilizer. <br />
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She kicked butt today and we couldn't be more proud of her. She's the toughest little soul we know.Josh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.com4