Wednesday, May 18, 2011
Lucy's surgery date is scheduled for June 20th. We were afraid that she would need another heart surgery, but we didn't expect it to be so soon. It's a nice relief to finally have an explanation for her complications and luckily it's something that can be repaired. Putting Lucy through another open heart surgery is the last thing we want to do, but if it fixes her heart and takes away her continuous oxygen requirement, then it's obviously something that has to be done to give her the freedom she deserves. We just hope this surgery goes better than the first one.
Tuesday, May 10, 2011
We enjoyed 9 long days with beautiful sunny, 90-degree weather. We had daily bike rides and visited the pool every day. It was definitely just like paradise and we didn't want to leave.
The trip was extremely liberating. If we can travel 1,200 miles by car with a toddler on oxygen, there's nothing we can't do and we're already looking forward to returning next year.
Relaxing under the Sun Smarties beach cabana tent.
Enjoying the beach!
"I don't want my toes to get wet!"
Water Logged Sausages
Ready to go for the daily bike ride.
"Not quite sure what we think about this."
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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