Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
2 comments:
Oh my gosh...those shirts are adorable! Even though I won't be here for the walk, I might have to get one to support baby Lucy! I hope you are having a better week. I am sorry I never made it to visit. I got called off Sunday night, and then they needed me to take care of a patient on ICU North. I was so busy both Tues and Wed I was never able to make it down:( But I have definitely been thinking about you guys and little Lucy! Thank you so much for your msgs on FB...I really appreciate the thoughts from both of you! You are two GREAT people and I am very lucky to have met you! I hope you have a good weekend and hopefully I will see you when I'm back next week! Tell Lucy HI for me:)
-Ashley
Those are so cute! Poor Eon will be so ashamed that his parents are such slackers and will have zero team coordination! Ah, well, I guess we'll still have the sign...and there's always next year. Maybe his folks will get their acts together by then. :)
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