Yesterday, the doctors took Lucy completely off the paralyzation drug, Cisatracurium, and it was the first time she moved her arms and legs in a week. A very big step in the process and she handled it well overnight. It's been extremely difficult not to be able to hold her or give her much stimulation, but it's a great feeling to see her move again. I can't express how excited I was to see her little eyes open and feet wiggle. Finally, a glimmer of hope that she'll soon be awake. Today, the doctors will slowly decrease the dosage of sedation drugs. The trick is to finding the right balance between keeping her comfortably sedated, but not too alert for her to realize there's a ventilator tube down her throat. They have to ensure she'll be able to safely breath on her own before they stop the ventilator.
In several more days, we'll soon have our little Lucy back.
Tuesday, August 25, 2009
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Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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1 comment:
The waiting game is the hardest. Hang in there.
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