Lucy gave us a good scare during surgery. She had difficulty coming off of bypass due to the stiffness of her lungs and had to be placed back on again. After waiting a bit Lucy was able to come off of bypass and was placed on nitric through her ventilator. The actual repair for her VSD, double outlet right ventricle, mitral valve and extra superior vena cava went well from a technical stand point but the surgeon was unable to close her chest at this time. Hopefully in the next few days Lucy's swelling will go down and the surgeon will be able to safely close her chest and surgery will be complete. Lucy will slowly recover in ICU for at least the next week as her heart and lungs adjust to the changes and she stabilizes. She has lots of tubes and wires, but everything is important and slowly everything will be taken out as they aren't needed. We still have a long road ahead of us but are ready for the ride. A big thank you to everyone for your support and prayers. We feel like a very lucky family to be able to make this journey with so many people rooting for us. Love to all.
Happy Belated Down Syndrome Awareness Month
11 months ago
2 comments:
I'm a complete stranger, knowing Lucy only through Twitter. I can't begin to tell you how much I've been thinking of her, and those who love her, in the last couple of days. My friend's daughter had surgery for CHD (TOF) at 3.5 months old. Now, 3 years later, she's the strongest kid on the block. I can tell that Lucy's a fighter and has that same kind of spirit. I look forward to watching her grow. I just wish that there was something I could do for you guys....
Thanks so much for all of the updates! I've been thinking about you guys a bunch! Your strength is simply amazing! Prayers will continue...
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