Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
3 comments:
Hey guys! It's Nurse Ashley here...just checking in. This picture makes me laugh...you're right, her little fingers look just like that! Hopefully it will get back to normal soon. I hope Lucy has a great rest of the week! She is so lucky to have such great parents! See you on Sunday!
Hi Josh and Sarah, I hope you guys are getting some sleep...easier said then done :) I have been thinking so much about you and your little Lucy! I started back to work Sat. and Sun. and heard she was having surgery on Monday. I have been following the blog and twitter page throughout the past few days. That picture is so cute with the title "Stay Puft Marshmallow Lucy!" Conner and Ellie have gotten quite a kick out of all the videos of Lucy and recent pictures. They are smitten with her for sure! You two are amazing and all our thoughts and prayers and headed your direction. Keep the positive thoughts coming and we will for sure send all of ours your way. Take care!
That is the most hysterical picture! Our kids can always find the brightest spot in our souls!
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