Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
3 comments:
Sarah,Josh and sweet Lucy, Thanks for the update. Lucy is so lucky to have the two of you for parents.Hang in there guys. Sarah, I will see you Friday with a BIG diet coke! We are sending up many prayers for your family. Heart hugs to all. Love Phoebe
What an adorable picture and little girl! We have been thinking about all of you. Lucy is in our prayers for a speedy recovery.
Love,
Kurt and Lisa
OMGoodness, you guys are laugh out loud funny!!! And I love the marshmallow pic too. Hopefully she will bust out of that joint soon!
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