Yesterday, the doctors took Lucy completely off the paralyzation drug, Cisatracurium, and it was the first time she moved her arms and legs in a week. A very big step in the process and she handled it well overnight. It's been extremely difficult not to be able to hold her or give her much stimulation, but it's a great feeling to see her move again. I can't express how excited I was to see her little eyes open and feet wiggle. Finally, a glimmer of hope that she'll soon be awake. Today, the doctors will slowly decrease the dosage of sedation drugs. The trick is to finding the right balance between keeping her comfortably sedated, but not too alert for her to realize there's a ventilator tube down her throat. They have to ensure she'll be able to safely breath on her own before they stop the ventilator.
In several more days, we'll soon have our little Lucy back.
Happy Belated Down Syndrome Awareness Month
11 months ago
1 comment:
The waiting game is the hardest. Hang in there.
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