I'm going to give everyone their medical lesson for the day.
Lucy's blood pressure and oxygen saturation levels were up and down last night. It's somewhat to be expected while the doctors slowly wean her off of nitric oxide, which is an inhaled gas that is helping relax the blood vessels in her lungs. Lucy has pulmonary hypertension, which is high blood pressure in the arteries that supply blood to the lungs, due to prematurity and Down Syndrome. Lucy is also currently on a ventilator, which is providing 90% oxygen and is breathing for her. Her lungs will slowly adjust as the dosage of nitric oxide is decreased and they slowly decrease the oxygen levels.
All very normal things, which will continue to take time as Lucy lets us know how to adjust her medications. Overall, she's still doing well and hopefully we'll get her out of the paralyzed and sedated state soon to see her sweet little eyes.
Happy Belated Down Syndrome Awareness Month
4 months ago
4 comments:
Thanks for the medical lesson--as it all overwhelms me and now it is "a bit" clearer--ha!! Love the new pics. The spirit of the two of you is AMAZING!! Stay strong and catch some ZZZZ's. Heart hugs to you and Lu. KP
Hi there, I just found your blog while doing a search for all things Ds. What a wonderful little cutie pie you have. I am the mother of a five year old daughter who also has a little bit of something extra by way of that twenty-first chromosome.
I also wanted to share that I know another Lucy who has Ds, whose grandmother writes wonderful stories about her. If you google "Beverly Beckham" and "Lucy", I'm sure you will find some of her stories.
Congratulations on your early sweet pea. I look forward to reading your blog.
I stumbled across your website today and wanted to come by and say hi!! I have a two year old daughter, also named Lucy Cait!!! I can't even believe the coincidence. She, too, has Ds and was born with a complete AV Canal that was surgically repaired when she was 6 months old.
If you get a chance, we'd love it if you'd stop by our blog and what "big girl" Lucy has been up to. We'll be keeping you and "baby" Lucy in our thoughts and prayers! www.cremcd.wordpress.com
Praying for you all. We also traveled this road. Matthew will be six on September 17th. It is an amazing and precarious journey, but God will carry your allt he way.
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