Thursday, November 26, 2009
Tuesday, November 24, 2009
Monday, November 23, 2009
Pulmonology would like to do a full 8-hour sleep study once she has fully recovered from her recent illness, to determine if she has sleep apnea and how much she actually obstructs her airway while sleeping at night. Unfortunately, Lucy's prolonged recovery hasn't allowed her to be home much to play and work on her neck control. Overall, she isn't as strong as she was prior to surgery. We hope to get home and stay there for longer than two weeks to really work strengthening her muscles and getting her orally interested again.
Lucy is still learning how to use her recently found voice, which is really cute, because she sometimes sounds like she's about to cry when she's just still learning. Pretty soon, she'll be babbling non-stop and we can't wait.
Saturday, November 21, 2009
Lucy has also been choking and retching more and now she is bringing up green bile. We have to wait until Monday for radiology to see if her J-tube is causing the problem. It hasn't been a very enjoyable experience for her.
Lucy also found her voice and is much more vocal now. She's learning to make sounds and loves to talk to her baby dolls and the toys she holds in her hand.
Tuesday, November 17, 2009
Monday, November 16, 2009
Monday, November 9, 2009
Lucy is so excited to get that stupid tube and tape off of her sweet face.
Saturday, November 7, 2009
Still the bigger questions are why she requires so much medication post-op to keep fluid from accumulating in and around her lungs. We continue to challenge the doctors as to what can be done for a better long-term solution. We'll keep everyone updated on how Lucy is during our hospital visit. Thanks for continually keeping her in your thoughts.
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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