This year, we are most thankful for our daughter, Lucy, who has shown us what the true meaning of life really is.
Happy Belated Down Syndrome Awareness Month
11 months ago
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Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Down’s Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
Reece's Rainbow
Lucy's Friends
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We are back!12 years ago
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Hello???? Is Anyone Out There???12 years ago
8 comments:
yay
big much love to all of you
very thankfully
Little Lucy Kate you have showed all of us what the true meaning of life is, that's for sure. We have all been blessed because of you.All the heart's you have touched is amazing! We love our little Granddaughter very, very much! Grandma and Grandpa
Happy Thanksgiving, LittleLuBug!
Hey Lu..with them arms in the air, you look like your cousin Rachel doing her cheerleader moves..how cute is that....Love my Granddaughter's!
Love the pics! So glad she's home and doing well!
I love these two pictures of Lucy... pure happiness. She is such a joy! Thank you for sharing her with us.
xoxo,
Danielle Smith
Josh, Sarah, and Lucy:
You don't know me, but I came across your blog when doing research on Enfaport, which our daughter will be eating for the next eight weeks as she recovers from having chylothorax. I actually read your blog from the beginning to where you are now in one sitting, and it's a wonderful story so far. I am glad that you have much to be thankful for, and I know Lucy is thankful for such wonderful parents.
Sarah and Josh, my name is Megan and am a 28 yr old living in San Diego, Ca. I was born with DORV and have been through numerous surgeries. Your story touched me and I wanted to reach out as a grown up 'heart baby' to say God bless
Megan
meganjonelson@yahoo.com
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