Lucy's surgery was a success and she's now resting back in our Heart Center room. She was sedated by anesthesiology and was put on a ventilator during the surgery. She came out of sedation and was breathing on her own, alert and playing immediately after. She's still in some pain, but she got a dosage of Tylenol and is now taking a well deserved nap. They placed the J-Tube in Interventional Radiology, so she has just one tube into her jejunum for now and she'll have to come back in 6 weeks to have the additional G-tube port placed after the wound has had time to heal. The hole will have to be stretched to allow for two ports.
Lucy is so excited to get that stupid tube and tape off of her sweet face.
Happy Belated Down Syndrome Awareness Month
11 months ago
7 comments:
Thank God for our little Lucy Kate successful surgery today. She is so strong to be so little. She is so loved by everybody. She's a little sweetheart. We love you dearly Little Lu Lu! Grandma and Grandpa
wonderful news:)
so happy the surgery went well!!! can't wait to see pics w/out the tube & tape!!!
yay
sending love to you all
well done, littlelu!
lc's cardiologist always said her heart was constantly running a marathon and her body was being asked to eat a thanksgiving dinner while she running it. lc's feeding tube(s) were such a lifesaver for her.
we hope this new J toobie keeps your juiciness to a minimum, l'il turkey, and you're able to snuggle up back at home very, very soon.
yah..no more tape on the face. We too just switched to a g tube after 11 months of ng. Glad it went well.
I just found this blog--I'm a 23 year old who was born with many of the complications of Tetralogy of Fallot, as well as some of my own things. My little brother was also born with a heart condition.
Thank you so much for this blog, which has allowed me a glimpse into what my parents experienced in my early years.
Wishing you the best.
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