Tuesday, August 17, 2010
Zipper Club Anniversary
Today, Lucy celebrates her 1 year open heart surgery anniversary. What an amazing and challenging year it has been for all of us. We have been through so much and had many ups and downs, but I think we have learned a lot and are much stronger from the experience. At the time, we had no idea what we were getting ourselves into. A 46 day ICU visit.
Lucy went into surgery that morning at 6AM, and after a grueling 10+ hour surgery, we were told that the repairs looked good and they were going to try to start her heart again. The doctors initially had an extremely difficult time getting Lucy off of the heart-lung bypass machine. Third time was finally a charm, but by that time Sarah and I both needed our own machines to keep our hearts beating. A huge weight was finally lifted off of our chests nearly 10 hours later.
At around 6PM, we were reunited with Lucy for the first time and little did we know that our prison-like Pediatric Intensive Care Unit room would become home for many weeks to come.
After reading back what we wrote during that time and seeing now just really how sick she was, it's a miracle that she survived surgery. It's something now that we, the doctors and even her heart surgeon can joke about. We all love you Lucy! Happy Anniversary!
(Lucy’s heart surgery documented on Flickr)
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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