Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
7 comments:
We received the Presidents Award as well!! How exciting!!
Awesome job!! Her chair is precious!
hi,
can't remember if i've introduced myself or not. but i found your blog via another.
way to go lucy and family for raising so much money and awareness!!! such an amazing award to receive!
So very proud of you Little Lucy Kate..you are such an inspiration to all of us! Congrats! on your Presidents Award!!I'm sure this is just the beginning of many more to follow! Go Lulu! xoxo
Yay Congratulations Lucy! What an awesome accomplishment.
way to go, kids..
yay!
xo
that is outstanding! way to go lucy (and of course her parents too)!!!!!
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