Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
3 comments:
before I even read your comments about Lucy's posture in the post I thought to myself "wow! look at how straight up Lucy is sitting - what great posture!" :) i love how well she is sitting on her stool working at her "coffee table desk"!!!
fabulous. also: the hospital photo, in juxtaposition looks like she's working on the laptop from the crib.
she is a multi tasker
love to you all
I do understand how it feels to have a special child. I also have Roi "Biloi", my son with CHD since he was 4 months old. Luckily with God's grace and miracle, he is 13 years old now, surviving even if he has been denied an open heart surgery due to RV failure. He has no prescribed medication except mutli-vitamins with iron. I created also a blog for him. biloi.blogspot.com.
Your child must be lucky enough to have responsible and loving parents like you. God bless!
dalene dolot
roi's mother
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