Thursday, February 18, 2010
We got that rhythm and beat
Yesterday, she was dropping her heart rate severely with her normal coughing and choking. At one point, her heart stopped beating for a full six seconds, and several other times dropping in the 40's. Lucy's hobbies include playing with toys, passing gas and scaring her parents to death.
Lucy is still on 13 medications, one of those is Digoxin, a drug that slows the heart and improves cardiac function. Labs were done yesterday to check the level of Digoxin in her blood after her episodes. A safe level is 0.5 to 2.0, Lucy's level was 3.3, which is highly toxic. Still unsure why it is so high, but could have slowly accumulated since August.
The inflammation around Lucy's GJ site has gone down dramatically, but we still have several things to figure out today.
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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