What an exciting adventure this has been. After 14 hours in the emergency room on Tuesday, Lucy was admitted back to the Heart Center.
Yesterday, she was dropping her heart rate severely with her normal coughing and choking. At one point, her heart stopped beating for a full six seconds, and several other times dropping in the 40's. Lucy's hobbies include playing with toys, passing gas and scaring her parents to death.
Lucy is still on 13 medications, one of those is Digoxin, a drug that slows the heart and improves cardiac function. Labs were done yesterday to check the level of Digoxin in her blood after her episodes. A safe level is 0.5 to 2.0, Lucy's level was 3.3, which is highly toxic. Still unsure why it is so high, but could have slowly accumulated since August.
The inflammation around Lucy's GJ site has gone down dramatically, but we still have several things to figure out today.
Happy Belated Down Syndrome Awareness Month
11 months ago
6 comments:
i am so sorry to hear that lucy had to be admitted to the heart center! doesn't she know it isn't nice to scare you to death (multiple times!!!) i hope they can get her heart beat resolved and get the toxic amt of the drug she was taking to improve cardiac function out of her system!!! thinking of you guys!
I know you're stressed and worried, but I love your sense of humor! I know it has brought you through so much already. Praying for your sweet girl! (If Eon continues to refuse fluids, we will be joining you at Riley later today...pneumonia.)
Oh my goodness, Lucy-- you're supposed to not give your parents troubles for another 15 years or so. Don't use up all your orneriness now!
Hope you guys are doing better tonight-- can't imagine how stressful a day you had!
Thinking of you!
Let us know if you need absolutely anything at all. Sending happy thoughts your way!
It means a lot that you keep posting notes despite all the sleep Mom & Dad are losing...that helps all of Lucy's fans keep up to speed. Praying for you to get strong, lovely Lu...Love, Miss Cara
We haven't had a chance to meet yet...Emily filled me in at the Mended little Hearts meeting last evening. You all are in my prayers! Little Lucy has a lot of spunk :) Healing thoughts to you!
Dana
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