Unfortunately, we wasted two days in the hospital. The doctors were unable to switch Lucy's tube at our developmental pediatrician's hospital, so we are scheduled to go back to the doctor who originally placed Lucy's J-tube on the 15th. That will be a quick outpatient visit and should only take a couple of hours.
It will take some time to truly know if Lucy requires the Nissen surgery, after we get milk and food back into her belly. She would have a gastric emptying study and an upper G.I. before we would proceed further with any surgery.
But all was not wasted while we were in the hospital. Lucy is now only on 1 liter of oxygen and tolerating it well. We hope to have her off of oxygen and one more toobie free by the end of summer.
Happy Belated Down Syndrome Awareness Month
11 months ago
2 comments:
Hate to hear about unnecessary hospital time!! Perhaps they're doing whatever it takes to lure cute Lucy back so they can get another dose of her.
LC never had the Nissen with her Gtube...but i don't think she had Lu's crazy reflux either. Hope things get settled, soon, so you can look forward to happier things...
-sigh-
but sending love, of course, and thinking good thoughts for Jace, too.
xxx
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