Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
3 comments:
You had better strap on a parachute! Lucy looks great!
LOL-too cute! Lucy seems to be doing great!
so pleased to see Lucy looking so well. My daughter had AVSD repair 18 yrs ago and that was terrifying, can't imagine the multiple problems Lucy has got through!Down's Heart Group were a great source of information and support for us, perhaps you should check them out www.dhg.org.uk or send them your story to help others. Good luck for the future x
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