Tuesday, July 27, 2010
Yesterday, Lucy got upset while she was playing and stopped breathing for about 60 seconds. She turned navy blue and scared us to death. She has been sick for over 4 weeks with a cold which has now turned into sinusitis. Lucy has a history of getting upset and crying so hard that she puts herself into pulmonary distress, sometimes passing out. Yesterday was one of the worst episodes that prompted a 911 call. Luckily, she recovered after getting cranked up to 6 liters of oxygen.
Sarah was home alone with Lucy when she called me at work, screaming frantically. I made it home in 17 minutes. It's normally over a 30 minute drive from work. It took the firemen, which are only 2 minutes away, at least 10 minutes to show up. By the time I had arrived, the fire department and ambulance had visited to see our little Houdini. Lucy had slowly recovered and was excited to be playing with all of her new friends.
Once we knew Lucy was okay, we decided to drive her to the ER, where we spent 8 hours in a tiny room just to get a chest x-Ray, viral swabs and bloodwork. Needless to say, it was a wonderful day. Her test results have been negative, so we will keep our fingers crossed that she doesn't have a serious respiratory virus and also that she doesn't pull any of these little stunts again.
Tuesday, July 20, 2010
Tuesday, July 6, 2010
Thursday, July 1, 2010
Most of Lucy's toys are all battery operated loud, spinning, shiny, glowing, moving, singing, beeping or rolling, so we decided it was time for her to enjoy a good old-fashioned wooden toy. You see most of these in doctor offices now, granted this one isn't covered in slime and boogers. We hope she will get her fill playing with this at home, so when she visits the doctor, we won't have to hose her down afterwards.
Lucy Kate Hopkins
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
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