Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
5 comments:
That look says it all!!!Lucy your just too dang cute and funny!Love ya..
happy new year you guys. sending you much love
My husband was dying laughing at this one. CLASSIC!!!
We are new parents to a three week old girl, Greta, who has Down's syndrome and AV canal (Milwaukee area). We love your sense of humor and perspective as you share Lucy and your journey -- you are inspirational! Looking forward to viewing her updates.
Sally
i saw this post a while ago and did not have time to write a comment... i am catching up on blogs today and just wanted to tell you i thought this post was HILARIOUS!!!
hope you guys are surviving the arctic tundra we are living in these days!!! by the way - happy belated birthday to lucy :)
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