Happy Belated Down Syndrome Awareness Month
11 months ago
This is the story of Lucy, delivered 10 weeks premature, weighing only 2lbs. She was born with Downs Syndrome and multiple congenital heart defects, spending 75 days in the NICU. She has underwent two open heart surgeries in August 2009 and June 2010 to repair her Atrioventricular (AV) Canal Defect, Ventricular septal defect, double outlet right ventricle, mitral valve and extra superior vena cava. We hope she touches your heart as much as she has touched ours.
5 comments:
Oh my my my your daughter is absolutely beautiful. I love her expressions. So soooooo sweet. My daughter also has red hair, don't see too many little red heads anymore. Alicen, my daughter was born 4 months early. She doesn't have downs but she has a ton of disabilities and is perfect too. We can really learn a lot from our kids can't we. I don't even know how I stumbled upon your blog but I hope you don't mind if I follow along.
Christina Wooley
a preemie mom (alicen_red_one@yahoo.com
Lucy..you make us happy!! Love this photo!!! What a beautiful little HAM !!!xoxo
Lucy Kate makes me smile every time I check in...I follow your blog linked from my daughter's blog...
I am Oliver and Vivian's granny! Hope you don't mind if I peek in from time to time. Lucy is a blessing to see! Joyce B
THIS would explain the chocolate chip Speedo I just found Jace wearing...
Lucy where did you get your shirt? I totally need one.
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