Stay Puft Marshmallow Lucy

Lucy has been terrorizing the ICU.

Since she is really puffy from all of the extra fluid in her body, her fingers look just like Marshmallow Puft's legs. So cute.

Lu & Mama

Lucy loves bouncing and giggling with Mama.

Bouncy Seat

Lucy catching a look at Daddy while playing in her bouncy seat. So precious.

Mr. Ray Charles, Ladies and Gentlemen

Lucy is too cool to give in to pulmonary pressure.

Wired Up

Lucy gave us a good scare during surgery. She had difficulty coming off of bypass due to the stiffness of her lungs and had to be placed back on again. After waiting a bit Lucy was able to come off of bypass and was placed on nitric through her ventilator. The actual repair for her VSD, double outlet right ventricle, mitral valve and extra superior vena cava went well from a technical stand point but the surgeon was unable to close her chest at this time. Hopefully in the next few days Lucy's swelling will go down and the surgeon will be able to safely close her chest and surgery will be complete. Lucy will slowly recover in ICU for at least the next week as her heart and lungs adjust to the changes and she stabilizes. She has lots of tubes and wires, but everything is important and slowly everything will be taken out as they aren't needed. We still have a long road ahead of us but are ready for the ride. A big thank you to everyone for your support and prayers. We feel like a very lucky family to be able to make this journey with so many people rooting for us. Love to all.

Sweet Dreams

Get your rest Lucy! Mommy and Daddy are looking over you every second. We'll be here to hold your hand when you wake up.

Finger Meats

I would recognize that sweet little hand anywhere.