Dinomite!

Lucy is the coolest baby in the ICU.

Look at those sunglasses.
LOOK AT THEM!

Mama & Lu

Mama always makes sure Lucy gets enough smooches.

Lucy Kate Update IV

Lucy didn't have any major setbacks last night, but she started to have an increase in the amount of fluid from her chest tube drainage. Over the past week, the fluid has been more serous, which is transparent in color. Late last night, the fluid turned more pink in color, which contained blood. Eventually it was red. There was concern where the excess fluid was originating from. Several chest X-Rays later, the fluid near her right lung inside the pleural cavity had completely disappeared.

Today, the plan is to completely wean her off nitric oxide, decrease her oxygen levels and respiration rate on the ventilator and continue to aggressively move forward.

We're finally getting closer to extubating her and weaning the paralyzing and sedation drugs.

We can't wait for her to be awake again.

Wired Up

Lucy gave us a good scare during surgery. She had difficulty coming off of bypass due to the stiffness of her lungs and had to be placed back on again. After waiting a bit Lucy was able to come off of bypass and was placed on nitric through her ventilator. The actual repair for her VSD, double outlet right ventricle, mitral valve and extra superior vena cava went well from a technical stand point but the surgeon was unable to close her chest at this time. Hopefully in the next few days Lucy's swelling will go down and the surgeon will be able to safely close her chest and surgery will be complete. Lucy will slowly recover in ICU for at least the next week as her heart and lungs adjust to the changes and she stabilizes. She has lots of tubes and wires, but everything is important and slowly everything will be taken out as they aren't needed. We still have a long road ahead of us but are ready for the ride. A big thank you to everyone for your support and prayers. We feel like a very lucky family to be able to make this journey with so many people rooting for us. Love to all.

Sweet Dreams

Get your rest Lucy! Mommy and Daddy are looking over you every second. We'll be here to hold your hand when you wake up.

Finger Meats

I would recognize that sweet little hand anywhere.

Home Sweet Home

Lucy's temporary home at Riley Pediatrics Intensive Care Unit. She has a great team of nurses looking after her 24 hours a day.