Life at Home

It's great to be back home. It's the small things that make a difference, like a floor with carpet to play on and a comfortable couch. But life is still busy. Lucy normally has two weekly doctor appointments for chest X-rays to monitor her progress. She is still on continuous feedings that are refilled every four hours and she has 12 medications that are given multiple times around the clock. It's definitely the best full-time job you can have, but a very busy one at that.

Lucy's two new favorite games are playing peek-a-boo and pulling the glasses off of your face. She's starting to get a little of her tummy back, because most of her shirts don't fit anymore, but we still need to fatten this baby up!

Good To Be Home

It's been a week now since we were discharged from the hospital and Lucy is much happier now that we can roll around and play on the floor. Carpet is such a luxury! Lucy has had a doctor appointment every day this week, so she's been very busy keeping up appearances.

Lucy is still on oxygen to help keep her "reserve". She doesn't require oxygen to breathe, but it will help her pulmonary hypertension and overall full recovery. She's also still on a continuous feeding pump until her stomach can tolerate full individual feedings again.

Lucy has recently taken a liking to her hand. As soon as she catches sight of this thing that is attached to her body, she's in complete awe. Probably staring at the unattractive manicure that Daddy gave her.

It's just so great to be home again and getting back to the way things were.