tag:blogger.com,1999:blog-2784683041026845995.post8498516269530004929..comments2023-11-05T02:32:34.895-05:00Comments on Teeny Tiny Hopkins: Lucy Kate Update XIVJosh Hopkinshttp://www.blogger.com/profile/17636459013671784105noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2784683041026845995.post-13667052674484622602009-09-14T19:14:02.478-04:002009-09-14T19:14:02.478-04:00Lovely Lucy, you have so grown since August! Thin...Lovely Lucy, you have so grown since August! Thinking of you & your pink cheeks, miss you! Miss CaraCarahttps://www.blogger.com/profile/18270773940519597830noreply@blogger.comtag:blogger.com,1999:blog-2784683041026845995.post-31521717078352203602009-09-14T00:59:59.335-04:002009-09-14T00:59:59.335-04:00Glad to hear that she is doing somewhat better. My...Glad to hear that she is doing somewhat better. My little one has a ng from birth. He is down to 24 cal right now but has been up to 27 cal prior to OHS. It did cause him a lot of gas. Hopefully they figure out how to make her happy and much more comfortable. Take care.Sasha@ Blyssfulhealthhttps://www.blogger.com/profile/03645600854443758785noreply@blogger.comtag:blogger.com,1999:blog-2784683041026845995.post-88435659975402330732009-09-13T22:15:49.851-04:002009-09-13T22:15:49.851-04:00just to let you know, our daughter Whitney had to ...just to let you know, our daughter Whitney had to have an ng tube inserted when she was about 2 weeks old because she was in congestive heart failure and unable to nurse or take a bottle anymore because she had become too weak and also she had 80% more blood flow going into her lungs than she should have had due to her mitral valve issues (+ additional holes in her heart). The doctors told us to fortify breast milk to make it 27 calories and eventually 30 calories to try to get her to gain weight so she could get bigger for her open-heart surgery. This did not work because the formula made her so incredibly sick that as time went on her GI problems became worse and worse until one day I could not stand to see her in such pain so I decided on my own to give her straight breast milk. Within 24 hours she was noticeably feeling better and the cramping and extreme GI pain had subsided. I was able to eventually introduce Similac Alimentum mixed with breast milk, slowly adjusting the amount we were introducing and never going above 24 calories... we would make 2 ounces exactly as indicated on the formula and mix that with breats milk (for example - if we were giving her 4 ounces total we would mix 3 ounces of breast milk with one ounce of alimentum and NOT fortify or add extra powder to make it higher calorie). <br /><br />I am NOT a doctor and I do not want to cause any problems by sharing this story with you... I just wanted to let you know that we went through a very similar struggle with fortified formula... we did not experience the lymphatic fluid leaking into the pleural cavity, so I am sure there are complicating factors --- I hope you don't mind that I shared our experience... I hate to think of Lucy in any pain like Whitney was from the fortified/extra calorie mix we were giving her!!!<br /><br />Hope things improve VERY soon!!!<br />thinking of you!Anne and Whitney: Up, Down and All Aroundhttps://www.blogger.com/profile/06206805918442920595noreply@blogger.com